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What is NF?

_Neurofibromatosis, also known as NF, is a genetic disorder of the nervous system that causes tumors to form on nerves anywhere in the body at any time. It is a progressive disorder that affects all races, all ethnic groups and both sexes equally. NF is the single most common genetic disorder of the nervous system, occurring in one in every 2500 to 3000 births. Despite its frequency, few people are familiar with NF.

There are three distinct forms of NF: NF1, NF2 and schwannomatosis. NF is unpredictable in its manifestations and its severity. There is no known cure NF, although the genes for NF1 and NF2 have both been identified.  Currently, NF has no effective treatment other than the surgical removal of tumors which may sometimes grow back.

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NF Fact Sheet

Click to download this free fact sheet about NF.
NF Michigan P.O. Box 6026 Grand Rapids, MI 49516 616-451-3699